Understanding CDH, one step at a time.

If you have just learned that your baby has congenital diaphragmatic hernia, you are likely frightened and looking for clear answers. This is a guided series, written in plain language by a pediatric surgeon, that walks from the first diagnosis through delivery, surgery, recovery, and long-term life, and ends with the science of why CDH happens and how we are working to do better.

Educational, not medical advice. These pages do not replace your own care team. If you have an urgent concern, call your physician or 911.

1Starting the journeyUnderstanding the diagnosis, severity, and first steps.2Understanding FETOThe before-birth procedure, who it helps, and the biology behind it.3Delivery and the NICUThe first hours, breathing support, pulmonary hypertension, and ECMO.4Surgery and recoveryWhen and how the repair happens, and what recovery looks like.5Long-term outcomesFeeding, growth, breathing, and life as your child grows.6Research and innovationHow we study fetal lung development and where fetal therapy is headed.

Glossary of terms you will hear →